The ileal orthotopic neobladder (IONB) is often used in patients undergoing radical cystectomy. The IONB allows to void avoiding the disadvantages of the external urinary diversion.In IONB patients the quality of life (QoL) appears compromised by the need to urinate voluntarily. The patients need to wake up at night interrupting the sleep-wake rhythm with consequences on social and emotional life.At present the QoL in IONB patients is evaluated by generic questionnaires. These are useful when IONB patients are compared with patients with different urinary diversions but they are less effective when only IONB patients are evaluated. To address this problem a specific questionnaire-the IONB-PRO-was developed.

Development of a questionnaire specifically for patients with Ileal Orthotopic Neobladder (IONB)

Siracusano, Salvatore;NIERO, Mauro;LONARDI, Cristina;CERRUTO, Maria Angela;Toffoli, Laura;VISALLI, Francesco;ARTIBANI, Walter;D'ELIA, Carolina;CACCIAMANI, GIOVANNI;DE MARCHI, DAVIDE;
2014

Abstract

The ileal orthotopic neobladder (IONB) is often used in patients undergoing radical cystectomy. The IONB allows to void avoiding the disadvantages of the external urinary diversion.In IONB patients the quality of life (QoL) appears compromised by the need to urinate voluntarily. The patients need to wake up at night interrupting the sleep-wake rhythm with consequences on social and emotional life.At present the QoL in IONB patients is evaluated by generic questionnaires. These are useful when IONB patients are compared with patients with different urinary diversions but they are less effective when only IONB patients are evaluated. To address this problem a specific questionnaire-the IONB-PRO-was developed.
Adult; Aged; Cystectomy; Female; Follow-Up Studies; Humans; Ileum; Interviews as Topic; Male; Middle Aged; Psychometrics; Reproducibility of Results; Health Status Indicators; Quality of Life; Surveys and Questionnaires; Urinary Diversion
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Utilizza questo identificativo per citare o creare un link a questo documento: http://hdl.handle.net/11562/930639
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